image of Experto crede



The article explains the processes involved in knowledge sharing and support giving in an open FB forum dedicated to endometriosis. It builds on the existing understanding of experiential knowledge, as well as adopts Jovchelovitch’s (2007) perspective on knowledge diversity and representation which views knowledge construction as an intersubjective process. The analysis looks at the what, the who, and the how of the community in question, focusing in particular on three areas: identity work (self- and other-categorisation); perspective sharing and recognition by “significant others”; and epistemic self-other positioning. The analysis determines the most common strategies of categorisation, identifies ways of constructing shared understanding, as well as reveals that the participants’ personal truths are based primarily on their embodied experience and hearsay.

Available under the CC BY-NC 4.0 license.

Article metrics loading...

Loading full text...

Full text loading...



  1. Akrich, Madeleine
    2010 “From Communities of Practice to Epistemic Communities: Health Mobilizations on the Internet.” Sociological Research Online(): –. 10.5153/sro.2152
    https://doi.org/10.5153/sro.2152 [Google Scholar]
  2. Amit, Vered
    2002 “Reconceptualizing Community.” InRealizing Community, ed. byVered Amit. London: Routledge. 10.4324/9780203451557_chapter_1
    https://doi.org/10.4324/9780203451557_chapter_1 [Google Scholar]
  3. Bally, Charles
    1970 [1909]Traité de Stylistique Française (vol.). Geneve: Librairie Georg – Librairie Klincksiec.
    [Google Scholar]
  4. Barker, Stephanie L. and Nick Maguire
    2017 “Experts by Experience: Peer Support and Its Use with the Homeless.” Community Mental Health Journal(): –. 10.1007/s10597‑017‑0102‑2
    https://doi.org/10.1007/s10597-017-0102-2 [Google Scholar]
  5. Bednarek, Monika
    2006 “Epistemological Positioning and Evidentiality in English News Discourse: A Text-Driven Approach.” Text & Talk(): –. 10.1515/TEXT.2006.027
    https://doi.org/10.1515/TEXT.2006.027 [Google Scholar]
  6. Bellander, Theres and Mats Landqvist
    2018 “Becoming the Expert. Constructing Health Knowledge in Epistemic Communities Online.” Information, Communication & Society: –. 10.1080/1369118X.2018.1518474
    https://doi.org/10.1080/1369118X.2018.1518474 [Google Scholar]
  7. Blume, Stuart
    2017 “In Search of Experiential Knowledge.” Innovation: The European Journal of Social Science Research(): –.
    [Google Scholar]
  8. Borkman, Thomasina
    1976 “Experiential Knowledge: A New Concept for the Analysis of Self-Help Groups.” Social Service Review(): –. 10.1086/643401
    https://doi.org/10.1086/643401 [Google Scholar]
  9. Botha, Antonie, Derrick Kourie, and Retha Snyman
    2008Coping with Continuous Change in the Business Environment, Knowledge Management and Knowledge Management Technology. Oxford: Chandice Publishing Ltd.
    [Google Scholar]
  10. Bou-Franch, Patricia, Nuria Lorenzo-Dus, and Pilar Garcés-Conejos Blitvich
    2012 “Social Interaction in YouTube Text-Based Polylogues: A Study of Coherence.” Journal of Computer Mediated Communication(): –. 10.1111/j.1083‑6101.2012.01579.x
    https://doi.org/10.1111/j.1083-6101.2012.01579.x [Google Scholar]
  11. Bruner, Jerome
    1991 “The Narrative Construction of Reality.” Critical Inquiry: –. 10.1086/448619
    https://doi.org/10.1086/448619 [Google Scholar]
  12. Bullo, Stella
    2018 “Exploring Disempowerment in Women’s Accounts of Endometriosis Experiences.” Discourse and Communication(): –. 10.1177/1750481318771430
    https://doi.org/10.1177/1750481318771430 [Google Scholar]
  13. 2020 “I Feel Like I’m Being Stabbed by a Thousand Tiny Men”: The Challenges of Communicating Endometriosis Pain.” Health(): –. 10.1177/1363459318817943
    https://doi.org/10.1177/1363459318817943 [Google Scholar]
  14. Bühler, Karl
    1934Sprachtheorie. Jena: Gustav Fischer.
    [Google Scholar]
  15. Caron-Flinterman, Francisca J., Jacqueline E. W. Broerse, and Joske F. G. Bunders
    2005 “The Experiential Knowledge of Patients: A New Resource for Biomedical Research?” Social Science & Medicine(): –. 10.1016/j.socscimed.2004.11.023
    https://doi.org/10.1016/j.socscimed.2004.11.023 [Google Scholar]
  16. Castro, Eva Marie, Tine Van Regenmortel, Walter Sermeus, and Kris Vanhaecht
    2018 “Patients’ Experiential Knowledge and Expertise in Health Care: A Hybrid Concept Analysis.” Social Theory & Health(): –. 10.1057/s41285‑018‑0081‑6
    https://doi.org/10.1057/s41285-018-0081-6 [Google Scholar]
  17. De Cock, Barbara and Carolina Figueras Bates
    2023 “Peer Experts as Actors for Shared Understanding in Spanish Online Health Fora.” InA Pragmatic Agenda for Healthcare. Fostering inclusion and active participation through shared understanding, ed. bySarah Bigi and Maria Grazia Rossi, –. Amsterdam/Philadelphia: John Benjamins. 10.1075/pbns.338.12dec
    https://doi.org/10.1075/pbns.338.12dec [Google Scholar]
  18. Dewey, John
    2005 “La Réalité Comme Expérience. Tracés.” Revue de Sciences humaines: –.
    [Google Scholar]
  19. Du Bois, John W.
    2007 “The Stance Triangle.” InStancetaking in Discourse: Subjectivity, Evaluation, Interactioned. byRobert Englebretson, –. Amsterdam/Philadelphia: John Benjamins. 10.1075/pbns.164.07du
    https://doi.org/10.1075/pbns.164.07du [Google Scholar]
  20. 2014 “Towards a Dialogic Syntax.” Cognitive Linguistics(): –. 10.1515/cog‑2014‑0024
    https://doi.org/10.1515/cog-2014-0024 [Google Scholar]
  21. Gumpertz, John
    1982Discourse Strategies. Cambridge: Cambridge University Press. 10.1017/CBO9780511611834
    https://doi.org/10.1017/CBO9780511611834 [Google Scholar]
  22. Halloy, Arnaud, Emmanuelle Simon, and Fabienne Hejoaka
    2022 “Defining Patient’s Experiential Knowledge: Who, What and How Patients Know. A Narrative Critical Review.” Sociology of Health and Illness(): –. 10.1111/1467‑9566.13588
    https://doi.org/10.1111/1467-9566.13588 [Google Scholar]
  23. Heritage, John
    2011 “Territories of Knowledge, Territories of Experience: Empathic Moments in Interaction.” InThe Morality of Knowledge in Conversation, ed. byTanya Stivers, Lorenza Mondada, and Jakob Steensig, –. Cambridge: Cambridge University Press. 10.1017/CBO9780511921674.008
    https://doi.org/10.1017/CBO9780511921674.008 [Google Scholar]
  24. Herring, Susan. C.
    2004 “Computer-Mediated Discourse Analysis: An Approach to Researching Online Communities.” InDesigning for virtual communities in the service of learning, ed. bySasha Barab, Rob Kling, and James Gray, –. Cambridge and New York: Cambridge University Press. 10.1017/CBO9780511805080.016
    https://doi.org/10.1017/CBO9780511805080.016 [Google Scholar]
  25. Housley, William and Richard Fitzgerald
    2009 “Membership Categorization, Culture and Norms in Action.” Discourse & Society(): –. 10.1177/0957926509102405
    https://doi.org/10.1177/0957926509102405 [Google Scholar]
  26. Hurvitz, Nathan
    1970 “Peer Self-Help Psychotherapy Groups and Their Implications for Psychotherapy.” Psychotherapy: Theory, Research, and Practice(): –. 10.1037/h0086549
    https://doi.org/10.1037/h0086549 [Google Scholar]
  27. Jacobs, Marion K., Gerald Goodman
    1989 “Psychology and Self-help Groups: Predictions on a Partnership.” American Psychologist(), –. 10.1037/0003‑066X.44.3.536
    https://doi.org/10.1037/0003-066X.44.3.536 [Google Scholar]
  28. Jakobson, Roman
    1960 “Closing Statements: Linguistics and Poetics.” InStyle in Language, ed. byThomas A. Sebeok, –. Cambridge, MA: MIT Press.
    [Google Scholar]
  29. Jovchelovitch, Sandra
    2007Knowledge in Context. Representations, Community and Culture. London: Routledge. 10.4324/9780203968895
    https://doi.org/10.4324/9780203968895 [Google Scholar]
  30. Kimmerle, Joachim, Ansgar Thiel, Kim-Kristin Gerbing, Martina Bientzle, Iassen Halatchliyski, and Ulrike Cress
    2012 “Knowledge Construction in an Outsider Community: Extending the Communities of Practice Concept.” Computers in Human Behavior(): –. 10.1016/j.chb.2012.09.010
    https://doi.org/10.1016/j.chb.2012.09.010 [Google Scholar]
  31. Lave, Jean and Etienne Wenger
    1991Situated Learning: Legitimate Peripheral Participation. Cambridge: Cambridge University Press. 10.1017/CBO9780511815355
    https://doi.org/10.1017/CBO9780511815355 [Google Scholar]
  32. Lindgren, Simon and Lorna Richardson
    2023 “Endometriosis Pain and Epistemic Community: Mapping Discourses in Online Discussions among Sufferers.” Social Science & Medicine: . 10.1016/j.socscimed.2023.115889
    https://doi.org/10.1016/j.socscimed.2023.115889 [Google Scholar]
  33. Mansfield, Gillian
    2019 “The Dynamics of Popularised Discourse for Diabetics: Online Forums for Information and Emotional Support.” Token: A Journal of English Linguistics: –.
    [Google Scholar]
  34. Marín-Arrese, Juana I.
    2009 “Commitment and Subjectivity in the Discourse of a Judicial Inquiry.” InModality in English, ed. byRaphale Salkie, Pierre Busuttil, and Johan van der Auwera, –. Berlin/New York: Mouton de Gruyter. 10.1515/9783110213331.237
    https://doi.org/10.1515/9783110213331.237 [Google Scholar]
  35. Miller, Hugh T. and Charles J. Fox
    2001 “The Epistemic Community.” Administration & Society(), –. 10.1177/00953990122019613
    https://doi.org/10.1177/00953990122019613 [Google Scholar]
  36. Pols, Jeannette
    2014 “Knowing Patients: Turning Patient Knowledge into Science.” Science, Technology & Human Values(): –. 10.1177/0162243913504306
    https://doi.org/10.1177/0162243913504306 [Google Scholar]
  37. Prior, Lindsay
    2003 “Belief, Knowledge and Expertise: the Emergence of the Lay Expert in Medical Sociology.” InSociology of Health & Illness(): –. 10.1111/1467‑9566.00339
    https://doi.org/10.1111/1467-9566.00339 [Google Scholar]
  38. Ricento, Thomas
    1987 “Clausal Ellipsis in Multi-Party Conversation in English.” Journal of Pragmatics: –. 10.1016/0378‑2166(87)90112‑3
    https://doi.org/10.1016/0378-2166(87)90112-3 [Google Scholar]
  39. Sacks, Harvey
    1972 “An Initial Investigation into the Usability of Conversational Data for Doing Sociology.” InStudies in Social Interaction, ed. byDavid Sudnow, –. New York: Free Press.
    [Google Scholar]
  40. Schegloff, Emmanuel
    2007 “A Tutorial on Membership Categorization.” Journal of Pragmatics: –. 10.1016/j.pragma.2006.07.007
    https://doi.org/10.1016/j.pragma.2006.07.007 [Google Scholar]
  41. Shoebotham, Amie and Neil S. Coulson
    2016 “Therapeutic Affordances of Online Support Group Use in Women with Endometriosis.” Journal of Medical Internet Research(), . 10.2196/jmir.5548
    https://doi.org/10.2196/jmir.5548 [Google Scholar]
  42. Stommel, Wyke and Tom Koole
    2010 “The Online Support Group as a Community: A Micro-Analysis of the Interaction with a New Member.” Discourse Studies(): –. 10.1177/1461445609358518
    https://doi.org/10.1177/1461445609358518 [Google Scholar]
  43. Weigand, Edda
    2021 “Dialogue. The Complex Whole.” Language and Dialogue(): –. 10.1075/ld.00106.wei
    https://doi.org/10.1075/ld.00106.wei [Google Scholar]
  44. 2023 “Principles of New Science. Dialogue between Science and Philosophy.” Language and Dialogue(): –. 10.1075/ld.00142.wei
    https://doi.org/10.1075/ld.00142.wei [Google Scholar]
  45. Weller, Paul
    2013 “Editorial Introduction.” Journal of Dialogue Studies(): –.
    [Google Scholar]
  46. Wenger, Etienne
    1998Communities of Practice: Learning, Meaning and Identity. New York: Cambridge University Press. 10.1017/CBO9780511803932
    https://doi.org/10.1017/CBO9780511803932 [Google Scholar]
  47. Wenger, Etienne, Richard Mcdermott, and William M. Snyder
    2002A Guide to Managing Knowledge: Cultivating Communities of Practice. Boston, MA: Harvard Business School.
    [Google Scholar]
  48. Wenger-Trayner, Etienne and Beverly Wenger-Trayner
    2015Introduction to Communities of Practice. A Brief Overview of the Concept and Its Uses. Available athttps://www.wenger-trayner.com/introduction-to-communities-of-practice/
    [Google Scholar]
  49. Whelan, Emma
    2003 “Putting Pain to Paper: Endometriosis and the Documentation of Suffering.” Health(): –. 10.1177/13634593030074005
    https://doi.org/10.1177/13634593030074005 [Google Scholar]

Data & Media loading...

  • Article Type: Research Article
Keywords: patient knowledge ; intersubjectivity ; community of practice ; online forum ; stance
This is a required field
Please enter a valid email address
Approval was successful
Invalid data
An Error Occurred
Approval was partially successful, following selected items could not be processed due to error