1887
Volume 27, Issue 2
  • ISSN 1387-6740
  • E-ISSN: 1569-9935
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Abstract

The paper presents findings from narrative analyses of interviews with 16 Gujarati women caring for a child with an intellectual disability in a midsized city in India. Participants’ mothering narratives articulate the multiple selves (or identities) they have constructed in the context of their child’s disability. In efforts to align with the cultural discourse on , women in this study sometimes narrate themselves as knowledge bearers and as agents, as people who labor and triumph over difficult circumstances, but at other times vulnerable and victimized as they navigate both their daily responsibilities and the social expectations and discourses regarding mothering. The identity narratives educate the audience of what mothering a child with an intellectual disability means in this unique sociocultural context.

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/content/journals/10.1075/ni.27.2.08joh
2017-10-06
2019-08-21
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References

  1. Bridges, S. A.
    (2016) Disability in the mountains: Culture, environment, and experiences of disability in Ladakh, India. (Unpublished doctoral dissertation). Case Western Reserve University, Cleveland, OH.
    [Google Scholar]
  2. Connor, D. J. , & Ferri, B. A.
    (2007) The conflict within: Resistance to inclusion and other paradoxes in special education. Disability & Society, 22 (1), 63–77. doi: 10.1080/09687590601056717
    https://doi.org/10.1080/09687590601056717 [Google Scholar]
  3. Crotty, M.
    (1998) The foundations of social research. New York: SAGE.
    [Google Scholar]
  4. Daley, T. C.
    (2002) The need for cross-cultural research on the pervasive developmental disorders. Transcultural Psychiatry, 39 (4), 531–550. doi: 10.1177/1363461502039004521
    https://doi.org/10.1177/1363461502039004521 [Google Scholar]
  5. (2004) From symptom recognition to diagnosis: Children with autism in urban India. Social Science & Medicine, 58 (7), 1323–1335. doi: 10.1016/S0277‑9536(03)00330‑7
    https://doi.org/10.1016/S0277-9536(03)00330-7 [Google Scholar]
  6. Divan, G. , Vajaratkar, V. , Desai, M. U. , Strik‐Lievers, L. , & Patel, V.
    (2012) Challenges, coping strategies, and unmet needs of families with a child with autism spectrum disorder in Goa, India. Autism Research, 5 , 190–200. doi: 10.1002/aur.1225
    https://doi.org/10.1002/aur.1225 [Google Scholar]
  7. Dykens, E. M.
    (2005) Happiness, well-being, and character strengths: Outcomes for families and siblings of persons with mental retardation. Mental Retardation, 43 , 360–364.
    [Google Scholar]
  8. Dymond, J. , & Willey, N.
    (2013) (Eds.) Motherhood memoirs: Mothers creating/writing lives. Bradford, ON: Demeter Press.
    [Google Scholar]
  9. Edwardraj, S. , Mumtaj, K. , Prasad, J. H. , Kuruvilla, A. , & Jacob, K. S.
    (2010) Perceptions about intellectual disability: A qualitative study from Vellore, South India. Journal of Intellectual Disability Research, 54 (8), 736–748. doi: 10.1111/j.1365‑2788.2010.01301.x
    https://doi.org/10.1111/j.1365-2788.2010.01301.x [Google Scholar]
  10. Grinker, R. R.
    (2007) Unstrange minds: Remapping the world of autism. New York, NY: Basic Books.
    [Google Scholar]
  11. Guzder, J. , & Krishna, M.
    (1991) Sita-Shakti: cultural paradigms for Indian women. Transcultural Psychiatric Research Review, 28 (4), 257–301. doi: 10.1177/136346159102800401
    https://doi.org/10.1177/136346159102800401 [Google Scholar]
  12. Harry, B.
    (1992) Making sense of disability: Low-income, Puerto-Rican parents’ theories of the problem. Exceptional Children, 59 , 27–40. doi: 10.1177/001440299205900104
    https://doi.org/10.1177/001440299205900104 [Google Scholar]
  13. (2008) Collaboration with culturally and linguistically diverse families: Ideal versus reality. Exceptional Children, 74 , 372–388. doi: 10.1177/001440290807400306
    https://doi.org/10.1177/001440290807400306 [Google Scholar]
  14. Hastings, R. P. , & Taunt, H. M.
    (2002) Positive perceptions in families of children with developmental disabilities. American Journal on Mental Retardation, 107 , 116–127. doi: 10.1352/0895‑8017(2002)107%3C0116:PPIFOC%3E2.0.CO;2
    https://doi.org/10.1352/0895-8017(2002)107%3C0116:PPIFOC%3E2.0.CO;2 [Google Scholar]
  15. Home, A.
    (2008) Is it all bad? rewards and challenges of mothering children with hidden disabilities. Social Work & Social Sciences Review, 13 (3), 7–24. doi: 10.1921/81146
    https://doi.org/10.1921/81146 [Google Scholar]
  16. John, A.
    (2012) Stress among mothers of children with intellectual disabilities in urban India: Role of gender and maternal coping. Journal of Applied Research in Intellectual Disabilities, 25 (4), 372–382. doi: 10.1111/j.1468‑3148.2011.00672.x
    https://doi.org/10.1111/j.1468-3148.2011.00672.x [Google Scholar]
  17. John, A. , Bailey, L. , & Jones, J.
    (2016) Culture and context: exploring attributions and caregiving approaches of parents of children with an intellectual disability in urban India. Child & Family Social Work. 22 (2), 670–679. doi: 10.1111/cfs.12282
    https://doi.org/10.1111/cfs.12282 [Google Scholar]
  18. Knight, K.
    (2013) The changing face of the ‘good mother’: Trends in research into families with a child with intellectual disability, and some concerns. Disability & Society, 28 (5), 660–673. doi: 10.1080/09687599.2012.732540
    https://doi.org/10.1080/09687599.2012.732540 [Google Scholar]
  19. Landsman, G.
    (1999) Does god give special kids to special parents? Personhood and the child with disabilities as gift and giver. In L Lane (Ed.). Transformative motherhood: On giving and getting in a consumer culture (pp. 133–165). New York: NYU Press.
    [Google Scholar]
  20. Lalvani, P.
    (2011) Constructing the (m)other: Dominant and contested narratives on mothering a child with down syndrome. Narrative Inquiry, 21 (2), 276–293. doi: 10.1075/ni.21.2.06lal
    https://doi.org/10.1075/ni.21.2.06lal [Google Scholar]
  21. Loseke, D.
    (2007) The study of identity as cultural, institutional, organizational & personal narrative: Theoretical and empirical integrations. The Sociological Quarterly, 48 , 661–688. doi: 10.1111/j.1533‑8525.2007.00096.x
    https://doi.org/10.1111/j.1533-8525.2007.00096.x [Google Scholar]
  22. McCall, G. , & Simmons, J. L.
    (1978) Identities and interactions. New york: The Free Press.
    [Google Scholar]
  23. Michie, M. , & Skinner, D.
    (2010) Narrating disability, narrating religious practice: Reconciliation and Fragile X syndrome. Intellectual and Developmental Disabilities, 48 , 99–111. doi: 10.1352/1934‑9556‑48.2.99
    https://doi.org/10.1352/1934-9556-48.2.99 [Google Scholar]
  24. Miller, E.
    (2011) Aspects of the storytelling revival in India. Retrieved fromwww.storytellinginstitute.org/123.pdf
  25. Miller, J. , & Glassner, B.
    (2011) The ‘inside’ and the ‘outside’: Finding realities in interviews. In D. Silverman (Ed.), Qualitative Research (pp.131–148). London, England: Sage Publications.
    [Google Scholar]
  26. Miltiades, H. B.
    (2002) The social and psychological effect of an adult child’s emigration on non-immigrant Asian Indian elderly parents. Journal of Cross-Cultural Gerontology, 17 , 33–55. doi: 10.1023/A:1014868118739
    https://doi.org/10.1023/A:1014868118739 [Google Scholar]
  27. Mishler, E. G.
    (1986) The analysis of interview-narratives. In T. Sarbin (Ed.), Narrative psychology: The storied nature of human conduct (pp.233–255). Westport, CT: Praeger Publishers/Greenwood Publishing Group.
    [Google Scholar]
  28. Newmark, P.
    (1988) A textbook of translation. New York: Prentice Hall.
    [Google Scholar]
  29. O’Reilly, A.
    (2014) Mothers, mothering and motherhood across cultural differences: A reader. Bradford, ON: Demeter Press.
    [Google Scholar]
  30. Patton, M. Q.
    (2002) Qualitative research and evaluation methods (3rd ed.). Thousand Oaks, CA: Sage Publications.
    [Google Scholar]
  31. Rao, S.
    (2001) ‘A little inconvenience’: Perspectives of Bengali families of children with disabilities on labelling and inclusion. Disability & Society, 16 (4), 531–548. doi: 10.1080/09687590120059522
    https://doi.org/10.1080/09687590120059522 [Google Scholar]
  32. (2006) Parameters of normality and cultural constructions of ‘mental retardation’: Perspectives of bengali families. Disability & Society, 21 (2), 159–178. doi: 10.1080/09687590500498127
    https://doi.org/10.1080/09687590500498127 [Google Scholar]
  33. Raval, V.
    (2009) Negotiating conflict between personal desires and others’ expectations in lives of Gujarati women. Ethos, 37(4), 489–511. doi: 10.1111/j.1548‑1352.2009.01070.x
    https://doi.org/10.1111/j.1548-1352.2009.01070.x [Google Scholar]
  34. Raval, V. V. , & Kral, M. J.
    (2004) Core versus periphery: Dynamics of personhood over the life-course for a Gujarati Hindu woman. Culture & Psychology, 10 (2), 162–194. doi: 10.1177/1354067X04040927
    https://doi.org/10.1177/1354067X04040927 [Google Scholar]
  35. Raval, V. V. , & Martini, T. S.
    (2009) Maternal socialization of children’s anger, sadness, and physical pain in two communities in Gujarat, India. International Journal of Behavioral Development, 33 (3), 215–229. doi: 10.1177/0165025408098022
    https://doi.org/10.1177/0165025408098022 [Google Scholar]
  36. Raval, V. V. , Raval, P. H. , & Deo, N.
    (2014) Mothers’ socialization goals, mothers’ emotion socialization behaviors, child emotion regulation, and child socioemotional functioning in urban India. The Journal of Early Adolescence, 34 (2), 229–250. doi: 10.1177/0272431613485821
    https://doi.org/10.1177/0272431613485821 [Google Scholar]
  37. Riessman, C. K.
    (2000) Stigma and everyday resistance practices: Childless women in south India. Gender & Society, 14 (1), 111–135. doi: 10.1177/089124300014001007
    https://doi.org/10.1177/089124300014001007 [Google Scholar]
  38. (2008) Narrative methods for the human sciences. Thousand Oaks, CA: Sage.
    [Google Scholar]
  39. Rodrigues, M. , Patel, V. , Jaswal, S. , & de Souza, N.
    (2003) Listening to mothers: Qualitative studies on motherhood and depression from Goa, India. Social Science & Medicine, 57 , 1797–1806. doi: 10.1016/S0277‑9536(03)00062‑5
    https://doi.org/10.1016/S0277-9536(03)00062-5 [Google Scholar]
  40. Sharma, U. & Das, A. K.
    (2015) Inclusive education in India: Past, present and future. Support for Learning, 30 , 55–68. doi: 10.1111/1467‑9604.12079
    https://doi.org/10.1111/1467-9604.12079 [Google Scholar]
  41. Tuli, M. , & Chaudhary, N.
    (2010) Elective interdependence: Understanding individual agency and interpersonal relationships in Indian families. Culture & Psychology, 16 (4), 477–496. doi: 10.1177/1354067X10380157
    https://doi.org/10.1177/1354067X10380157 [Google Scholar]
  42. Vaidya, S.
    (2009, August). A sociological study of families with autism in Delhi: Issues and challenges. Paper presented at theAsian Pacific autism conference, Sydney, Australia.
    [Google Scholar]
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  • Article Type: Research Article
Keyword(s): identity , Indian mothers , intellectual disability , narrative analysis and qualitative research
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