Linguistic and cultural adaptation of the National Quality of Life Survey in Colombia for the deaf population

References

1. Akobirshoev, Ilhom,
   2022 “Opioid use disorder-related emergency department visits among deaf or hard of hearing adults in the United States.” Disability and Health Journal15(2S). 10.1016/j.dhjo.2022.101291
   https://doi.org/10.1016/j.dhjo.2022.101291 [Google Scholar]
2. Andrade, Luana Foroni,
   2021 “Construct validation and reliability analysis of the self-assessment of occupational functioning instrument for deaf people in the Brazilian Sign Language.” Texto & Contexto Enfermagem301: 1–12. 10.1590/1980‑265x‑tce‑2020‑0515
   https://doi.org/10.1590/1980-265x-tce-2020-0515 [Google Scholar]
3. Asonye, Emmanuel Ihechi, Ezinne Emma-Asonye, and Mary Edward
   2018 “Deaf in Nigeria: A preliminary survey of isolated deaf communities.” SAGE Open8(2). 10.1177/2158244018786538
   https://doi.org/10.1177/2158244018786538 [Google Scholar]
4. Ayala-Hernandez, Jessica María, Alejandra Lopera-Escobar, Sandra Yaned Cadavid-Mazo, and Diego Alexander Pulgarin-Ossa
   2021 “The interaction between the healthcare professional and the deaf person: Experiences from the Colombian healthcare system.” Journal of Developmental and Physical Disabilities33(6): 993–1004. 10.1007/s10882‑020‑09784‑4
   https://doi.org/10.1007/s10882-020-09784-4 [Google Scholar]
5. Baeza, Fernanda L. C., Marco A. K. Caldieraro, Diesa O. Pinheiro, and Marcelo P. Fleck
   2010 “Translation and cross-cultural adaptation into Brazilian Portuguese of the Measure of Parental Style (MOPS) — A self-reported scale — According to the International Society for Pharmacoeconomics and Outcomes Research (ISPOR) Recommendations.” Revista Brasileira de Psiquiatria32(2): 159–63. 10.1590/S1516‑44462010000200011
   https://doi.org/10.1590/S1516-44462010000200011 [Google Scholar]
6. Barnett, Steven,
   2011 “Community participatory research with deaf sign language users to identify health inequities.” American Journal of Public Health101(12): 2235–38. 10.2105/AJPH.2011.300247
   https://doi.org/10.2105/AJPH.2011.300247 [Google Scholar]
7. Beaton, Dorcas, Claire Bombardier, Francis Guillemin, and Marcos Bosi Ferraz
   2007 Recommendations for the cross-cultural adaptation of the DASH & QuickDASH outcome measures. Institute for Work & Health.
   [Google Scholar]
8. Bosch-Baliarda, Marta, Olga Soler Vilageliu, and Pilar Orero
   2019 “Toward a sign language-friendly questionnaire design.” Journal of Deaf Studies and Deaf Education24(4): 333–45. 10.1093/deafed/enz021
   https://doi.org/10.1093/deafed/enz021 [Google Scholar]
9. Brammen, Dominik,
   2018 “Lessons learned in applying the international society for pharmacoeconomics and outcomes research methodology to translating Canadian emergency department information system presenting complaints list into German.” European Journal of Emergency Medicine25(4): 295–99. 10.1097/MEJ.0000000000000450
   https://doi.org/10.1097/MEJ.0000000000000450 [Google Scholar]
10. British Society for Mental Health and Deafness
    British Society for Mental Health and Deafness 2010 “Deaf people’s mental wellbeing put at risk by lack of services.” Press Release. https://bsmhd.org.uk/
    [Google Scholar]
11. Colina, Sonia,
    2017 “Translation quality assessment in health research. A functionalist alternative to back-translation.” Evaluation & the Health Professions40(3): 267–293. 10.1177/0163278716648191
    https://doi.org/10.1177/0163278716648191 [Google Scholar]
12. Crume, Peter
    2020 “Overview of the legal recognition of sign languages around the world.” Journal of Deaf Studies and Deaf Education25(3): 378–79. 10.1093/deafed/enz053
    https://doi.org/10.1093/deafed/enz053 [Google Scholar]
13. Cui, Yiran, and Yan Yan
    2022 “Association of all cause and cause-specific mortality with hearing loss among US adults: A secondary analysis study.” International Journal of Public Health671: art. 1604785. 10.3389/ijph.2022.1604785
    https://doi.org/10.3389/ijph.2022.1604785 [Google Scholar]
14. De Meulder, Maartje, and Hilde Haualand
    2021 “Sign language interpreting services: A quick fix for inclusion?” Translation and Interpreting Studies16(1): 19–40. 10.1075/tis.18008.dem
    https://doi.org/10.1075/tis.18008.dem [Google Scholar]
15. Departamento Administrativo Nacional de Estadística
    Departamento Administrativo Nacional de Estadística 2018 “Encuesta nacional de calidad de vida — ECV.” Archivo Nacional de Datos. microdatos.dane.gov.co/index.php/catalog/607/data_dictionary
    [Google Scholar]
16. Departamento Administrativo Nacional de Estadística
    Departamento Administrativo Nacional de Estadística 2019 “Catálogo central de datos.” Archivo Nacional de Datos. https://microdatos.dane.gov.co/index.php/catalog/central/about
    [Google Scholar]
17. Douglas, Susan P., and C. Samuel Craig
    2007 “Collaborative and iterative translation: An alternative approach to back translation.” Journal of International Marketing15(1): 30–43. 10.1509/jimk.15.1.030
    https://doi.org/10.1509/jimk.15.1.030 [Google Scholar]
18. Emond, Alan,
    2015 “The current health of the signing deaf community in the UK compared with the general population: A cross-sectional study.” BMJ Open5(1): 1–7. 10.1136/bmjopen‑2014‑006668
    https://doi.org/10.1136/bmjopen-2014-006668 [Google Scholar]
19. Enns, Charlotte, Vera Kolbe, and Claudia Becker
    2021 “Challenges and solutions in test adaption comparing international experiences with the British Sign Language production test (narrative skills).” Sign Language & Linguistics24(2): 226–58. 10.1075/sll.20010.enn
    https://doi.org/10.1075/sll.20010.enn [Google Scholar]
20. Fuentes-López, Eduardo, and Adrian Fuente
    2020 “Access to healthcare for deaf people: A model from a middle-income country in Latin America.” Revista de Saúde Pública541: 1–11. 10.11606/s1518‑8787.2020054001864
    https://doi.org/10.11606/s1518-8787.2020054001864 [Google Scholar]
21. Gjersing, Linn, John Rm Caplehorn, and Thomas Clausen
    2010 “Cross-cultural adaptation of research instruments: Language, setting, time and statistical considerations.” BMC Medical Research Methodology101: art. 13. 10.1186/1471‑2288‑10‑13
    https://doi.org/10.1186/1471-2288-10-13 [Google Scholar]
22. Graybill, Patrick,
    2010 “A community-participatory approach to adapting survey items for deaf individuals and American Sign Language.” Field Methods22(4): 429–48. 10.1177/1525822X10379201
    https://doi.org/10.1177/1525822X10379201 [Google Scholar]
23. Haualand, Hilde, and Allen Colin
    2009 Deaf People and Human Rights. Human Rights.
    [Google Scholar]
24. Henner, Jon, Robert Hoffmeister, and Jeanne Reis
    2017 “Developing sign language measurements for research with deaf populations. InResearch in Deaf Education: Contexts, Challenges, and Considerations, ed. byStephanie W. Cawthon and Carrie Lou Garberoglio, 141–160. Oxford: Oxford University Press.
    [Google Scholar]
25. Herdman, M., J. Fox-Rushby, and X. Badia
    1998 “A model of equivalence in the cultural adaptation of HRQol.” Quality of Life Research7(7): 323–323. 10.1023/A:1008846618880
    https://doi.org/10.1023/A:1008846618880 [Google Scholar]
26. Humphries, Tom,
    2019 “Support for parents of deaf children: Common questions and informed, evidence-based answers.” International Journal of Pediatric Otorhinolaryngology1181: 134–42. 10.1016/j.ijporl.2018.12.036
    https://doi.org/10.1016/j.ijporl.2018.12.036 [Google Scholar]
27. Iwarsson, S., and A. Ståhl
    2003 “Accessibility, usability and universal design — Positioning and definition of concepts describing person-environment relationships.” Disability and Rehabilitation25(2): 57–66. 10.1080/dre.25.2.57.66
    https://doi.org/10.1080/dre.25.2.57.66 [Google Scholar]
28. Jagoe, Caroline, Caitlin McDonald, Minerva Rivas, and Nora Groce
    2021 “Direct participation of people with communication disabilities in research on poverty and disabilities in low and middle income countries: A critical review.” PLoS ONE161: 1–24. 10.1371/journal.pone.0258575
    https://doi.org/10.1371/journal.pone.0258575 [Google Scholar]
29. Judit, Fernández Solano Ana,
    2022 “Translation and cultural adaptation into Spanish of the engagement in meaningful activities survey.” Occupational Therapy International 2022: art. 4492582. 10.1155/2022/4492582
    https://doi.org/10.1155/2022/4492582 [Google Scholar]
30. Kuenburg, Alexa, Paul Fellinger, and Johannes Fellinger
    2016 “Health care access among deaf people.” Journal of Deaf Studies and Deaf Education21(1): 1–10. 10.1093/deafed/env042
    https://doi.org/10.1093/deafed/env042 [Google Scholar]
31. Kuhl, Patricia K.
    2007 “Cracking the speech code: How infants learn language.” Acoustical Science and Technology28(2): 71–83. 10.1250/ast.28.71
    https://doi.org/10.1250/ast.28.71 [Google Scholar]
32. Kushalnagar, P., Alina Engelman, and G. Sadler
    2018 “Deaf patient-provider communication and lung cancer screening: Health Information National Trends Survey in American Sign Language (HINTS-ASL).” Patient Education and Counseling101(7): 1232–39. 10.1016/j.pec.2018.03.003
    https://doi.org/10.1016/j.pec.2018.03.003 [Google Scholar]
33. Ma, Yidan, Weifeng Xue, Qin Liu, and Yin Xu
    2022 “Discrimination and deaf adolescents’ subjective well-being: The role of deaf identity.” The Journal of Deaf Studies and Deaf Education27(4): 399–407. 10.1093/deafed/enac013
    https://doi.org/10.1093/deafed/enac013 [Google Scholar]
34. Marschark, Marc, Brenda Schick, and Patricia Elizabeth Spencer
    2005 “Understanding sign language development of deaf children.” InAdvances in the Sign Language Development of Deaf Children, ed. byBrenda Schick, Marc Marschark, and Patricia E. Spencer, 3–19. New York: Oxford University Press. 10.1093/acprof:oso/9780195180947.001.0001
    https://doi.org/10.1093/acprof:oso/9780195180947.001.0001 [Google Scholar]
35. Mayer, Connie
    2007 “What really matters in the early literacy development of deaf children.” Journal of Deaf Studies and Deaf Education12(4): 411–31. 10.1093/deafed/enm020
    https://doi.org/10.1093/deafed/enm020 [Google Scholar]
36. Ministerio de Educación Nacional and Instituto Nacional para Sordos
    Ministerio de Educación Nacional and Instituto Nacional para Sordos 2011 “Diccionario Básico de La Lengua de Señas Colombiana,” 325–325.
    [Google Scholar]
37. Napier, Jemina,
    2018 “Using video technology to engage deaf sign language users in survey research: An example from the Insign Project.” Translation and Interpreting10(2): 101–121. 10.12807/ti.110202.2018.a08
    https://doi.org/10.12807/ti.110202.2018.a08 [Google Scholar]
38. Portney, Leslie Gross., and Mary P. Watkins
    2015 Foundations of Clinical Research: Applications to Practice. 3rd ed.F. A. Davis Company.
    [Google Scholar]
39. Rivas Velarde, Minerva, Caroline Jagoe, and Jessica Cuculick
    2022 “Video relay interpretation and overcoming barriers in health care for deaf users: Scoping review.” Journal of Medical Internet Research24(6). 10.2196/32439
    https://doi.org/10.2196/32439 [Google Scholar]
40. Roberson, Len, and Sherry Shaw
    eds. 2018 Signed Language Interpreting in the 21st Century: An Overview of the Profession. Washington, DC: Gallaudet University Press. 10.2307/j.ctv2rh28gg
    https://doi.org/10.2307/j.ctv2rh28gg [Google Scholar]
41. Roberts, Sophie,
    2015 “Translation into British Sign Language and validation of the strengths and difficulties questionnaire.” Health Services and Delivery Research3(2): 1–96. 10.3310/hsdr03020
    https://doi.org/10.3310/hsdr03020 [Google Scholar]
42. Rogers, Katherine, Claire Dodds, Malcolm Campbell, and Alys Young
    2018 “The validation of the Short Warwick-Edinburgh Mental Well-Being Scale (SWEMWBS) with Deaf British Sign Language users in the UK.” Health and Quality of Life Outcomes16(1): 1–12. 10.1186/s12955‑018‑0976‑x
    https://doi.org/10.1186/s12955-018-0976-x [Google Scholar]
43. Rogers, Katherine,
    2014 “The reliability of British Sign Language and English Versions of the clinical outcomes in routine evaluation — Outcome measure with d/Deaf populations in the UK: An initial study.” Health & Social Care in the Community22(3): 278–89. 10.1111/hsc.12078
    https://doi.org/10.1111/hsc.12078 [Google Scholar]
44. Rogers, Katherine,
    2016 “Translation, validity and reliability of the British Sign Language (BSL) version of the EQ-5D-5L.” Quality of Life Research25(7): 1825–34. 10.1007/s11136‑016‑1235‑4
    https://doi.org/10.1007/s11136-016-1235-4 [Google Scholar]
45. Rogers, Katherine,
    2012 “The British Sign Language versions of the Patient Health Questionnaire, the Generalized Anxiety Disorder 7-Item Scale, and the Work and Social Adjustment Scale.” 10.1093/deafed/ens040
    https://doi.org/10.1093/deafed/ens040 [Google Scholar]
46. The Washington Group on Disability Statistics
    The Washington Group on Disability Statistics 2022 “Translation Guidelines.” www.washingtongroup-disability.com/implementation/translation-guidelines/
47. Tyupa, Sergiy
    2011 “A theoretical framework for back-translation as a quality assessment tool.” New Voices in Translation Studies7(1): 35–46.
    [Google Scholar]
48. Ubido, J., J. Huntington, and D. Warburton
    2002 “Inequalities in access to healthcare faced by women who are deaf.” Health & Social Care in the Community10(4): 247–53. 10.1046/j.1365‑2524.2002.00365.x
    https://doi.org/10.1046/j.1365-2524.2002.00365.x [Google Scholar]
49. Ward, Deborah J., Christine Furber, Stephanie Tierney, and Veronica Swallow
    2013 “Using framework analysis in nursing research: A worked example.” Journal of Advanced Nursing69(11): 2423–31. 10.1111/jan.12127
    https://doi.org/10.1111/jan.12127 [Google Scholar]
50. Witko, Joanne, Pauline Boyles, Kirsten Smiler, and Rachel McKee
    2017 “Deaf New Zealand Sign Language users’ access to healthcare.” New Zealand Medical Journal130(1466): 53–61.
    [Google Scholar]
51. World Federation of the Deaf
    World Federation of the Deaf 2021 “Our work — WFD.” https://wfdeaf.org/our-work/#what-we-do
52. World Health Organization
    World Health Organization 2022 “Global Report on Health Equity for Persons with Disabilities.” Geneva. https://www.who.int/publications/i/item/9789240063600